Wednesday, March 19, 2014

Health Update

I’ve had a lot of people ask about my current health status considering I am almost halfway through my treatments.  Since cancer seems to be more of an emotional battle than a physical battle at times, I sometimes forget to provide these updates but I do know people care and want to know how I’m doing.

On March 10th (a week and a half ago) I went in for my fourth and final AC treatment.  My mom and Aunt Vicky were there to support me.  This is somewhat of a crowning moment (if there is such a thing) during one’s breast cancer fight.  Having your last AC treatment means the worst is about to be over.  But first, you have to get through the next 2-3 weeks of the worst and that brings me to today.  My doctor explains it like this….”Say I give you 10 pounds for your first treatment.  At the end you give me 5 pounds back.  Then for your second I give you another 10 but you still have 5 left over.  At the end of your second you give me 5 pounds back but you have 10 left over….and so on”.   So I’m going into this last AC treatment with 15 pounds of cumulative garbage. 

I remember when I first started my treatment.  My blood counts looked great.  I was a healthy 32 year old despite the fact that I had a big tumor hanging out in my left breast.  Now I look at my counts and I have low and high markers riddled over the page.  For example, the reason my muscles ache immediately when I try to exercise is that my hemoglobin is low and that’s what carries the oxygen to them.   Chemo attacks my bad cells that are trying to overtake my body but it also kills off my good fast-growing cells.  That of course is why I lose my hair and as of recent, my eyelashes and eyebrows (something that I find even harder to deal with than the hair…my eyelashes used to be one of my favorite attributes).  
The lining of your stomach and intestines is also made up of fast reproducing cells and therefore, they are no fight for chemo…you lose a lot of the protective lining in your gut as well.  This is why patients have problems with constipation and nausea.  I’ve been lucky to not feel these effects but in the past 5 weeks my resulting symptom came on as a numbing ulcer.  This being the worst of my treatment, I’ve also had terrible heartburn which makes my ulcer flare up even worse.   The pain is constant, always nagging me on my upper left side.  Last week they wanted to rule out any other more severe causes of the pain before they provided a diagnosis.  They ran a D-dimer blood test to see if the culprit was a possible blood clot moving to my lung.  The test came back elevated and I ended up hanging out at the doctor’s office all day going through ultrasounds to ensure there were no clots in my legs.  Lucky me, it turned out to be a false positive and by process of elimination they ruled my pain as an ulcer.  In the past week this nagging pain has moved on to an excruciating, piercing pain moments after I eat.   Historically, days 7-14 of my treatment cycle have been the worst; I hold on to the fact that I am at day 10…this is almost over!

I’m still experiencing terrible dry mouth.  This may sound like nothing but it is actually quite annoying because when I try to sleep my mouth literally dries shut and my nose becomes very congested, making it hard to breath.  This results in a terrible sleeping pattern of constantly getting up to drink water and then waking up 30 minutes later to go to the bathroom.  I pray that God blesses me with a baby that sleeps well.  I think it would be quite a deserving consolation prize!

Understand now why my blog isn’t a focus of my health updates?  It would be rather depressing.  The good news is that I have yet to get “sick”.  Everyone I know, including my dog even, has had a cold this winter.  I, on the other hand, have managed to stay clear of the winter cold this year despite my compromised immune system.  Could this be a product of all your prayers? Also, I'm happy to report that my tumor has shrunk substantially.  It's about the size of a pencil eraser!

We’ve all heard of the mid-life crisis but could there be such a thing as the “mid-treatment crisis”?  If so, I think I had it this weekend.  Last Sunday I had a meltdown after I experienced a wig malfunction.  Of course, it was the wig that triggered what I believe was just a need to let all the bottled emotion out.  While trying to remain strong through all of this I have continually pushed the bad stuff deep down inside me.  That now 25 pound garbage bag finally became too heavy to carry and I lost it.  In the end, the wig problem worked itself out (they are replacing my defective one) and that moment of crisis played well into another chapter of my love story with my husband.  He was there to comfort me and worked on helping me untangle my wig for over an hour.  Where would I be without him through this?
While typing this post I’m reminded of a life lesson.  I sit here telling my stories of minor problems that I face today and in the background I listen to the news of a girl who was kidnapped, molested, and murdered and a women whose husband is missing because he was on Flight 370 and a lady with no face who was mauled by her pet chimpanzee.   Little girl:  I’m sure there will be a moment in your life when you feel the world is coming to an end.  Maybe your boyfriend has cheated on you with another more popular girl or one of your friends was talking behind your back or your team lost an important game…Life is filled with sad, difficult, and even tragic moments but remember somewhere out there, there is someone who is experiencing something even worse than you.  I believe God uses difficult moments in our lives to teach us, make us stronger, and draw us closer to Him.  Most importantly we need these moments to appreciate the beauty in life.  We say in Minnesota that we appreciate the summers more because we endure the harsh winters.  Would the sun be so great if we didn’t experience a cloudy day?  I look back to our honeymoon and remember feeling absolute bliss as we took a ferry to tour the French Riviera.  We ended up at one of the most beautiful white beaches in San Tropez where Ben and I wrestled each other in the water.  I remember walking the streets of Paris with our friends.  I cherish these moments even more now and I look forward to more moments like this in the future.  While at our Childbirth Prep class this weekend many were complaining about not receiving a voucher for parking.  Ben and I laughed as we talked about how we have to pay $10 for parking each time we come to the hospital- some weeks it’s been every day.  My sweet baby:  remember to keep your life in perspective.  And while I am not trying to downplay what you are experiencing or push away your emotions I want you to remember that in the end the good always outweighs the bad.  You will look back at these moments and laugh that you worried so much.

Tuesday, March 11, 2014

Pity Party

I’ve mentioned before that not every day is a great day… my positive hat falls off from time to time.  Some days I feel more at peace and full of joy than I even did before the diagnosis. Other days I get down and yes, even feel sorry for myself…call me a normal human being. 

One of my favorite parts of any normal day used to be after work when Ben and I would go to the gym and I’d have some “Athena time”.  Working out or running was my release, considering I office at home and need some time to separate work from life.  But lately, as you can imagine, the gym has been a tough place for me.  I will be honest, the first time I went to the gym without my hair was hard and honestly it hasn't gotten much easier.  My belly has been growing in rapid speed now and it shows clearly through my tight gym clothes.  I notice that everyone is looking at me out of the corner of their eyes.  That’s understandable. I would wonder what the heck was going on too.  A bald, pregnant woman?  I realize they are looking on with concern but still it’s tough to be the one that stands out as something that’s hard to understand.  Obviously pregnancy brings on quite a change to a woman’s body.  Couple that with the changes contributed from chemo and it’s a lot to take on when you look in the mirror.   I wish I could have every young woman/teenager experience this feeling.  You learn a lot about yourself when you are stripped of your physical attributes.  The gym no longer serves as a place to clear my thoughts but rather a place where they flood my brain and I have to deal with a lot of different emotions.  Again, this is a process of growth for me and some days it’s empowering and some days it’s hard. 
Chemo + Pregnancy = Muscle Fatigue…duh, no kidding.  It blows my mind how I can actually feel this drug cycle through my body.  The first couple days after an infusion my heart races from the steroids and I think I should go burn this off at the gym.  But as soon as I begin running it’s as if I did 100 squats right before.  My legs feel like jello within the first half mile even. I’ll do about 10 reps of free weights and it feels like I am at the tail end of a 3 hour workout.  I have 3 weeks between each treatment.  During my third week I gain my strength back and I actually feel quite sad when the “Sunday Before” comes around.  Then I know it starts all over again the next day.   About a month ago I was talking about how The Big C couldn’t keep me down and I was able to top off 5 miles still.  I knew it was only a matter of time where those miles would shorten and my run would come to a jog and even a walk.  After 4 infusions and 24 weeks of pregnancy I’ve had to set different goals that are more reachable.  But here’s the secret…I am still winning as long as my mind is in the right place.   When physical activity or a sport has a big part of your life it is tough to see these changes.  I’ve always correlated physical strength and endurance with inner strength and perseverance.  Now that inner strength needs to channel from elsewhere.   

You’ll find that inner strength is harder to come by when you’ve been stripped of many of the things that make you happy:  good health, energy, physical strength, looks.  And so Debbie Downer comes out to play for a day and she feels oh so sorry for herself.  “I’ve worked so hard to get where I am at.  Why do I have to go through this now?” “Ben and I are in the midst of starting a family, one of the happiest times of our life.  Why this dark cloud during what should be this sweet time?”  “This is not fair!  I lead a healthy lifestyle, why me?” “Why can’t I ever catch a break?  It’s one thing after another”….blah, blah blah… Debbie goes on and on. 
One of the hardest things to do during times of trial and tribulation is to count your blessings.  But, what I’ve found is that this is the most critical time to do so.  Otherwise you go down this path of self-pity and that gets you nowhere.  Then poof, inner strength diminishes and your fight becomes well…rough.  I’ve learned that concentrating on ways I’ve been blessed brings on healing- emotional and physical.

So here goes:
I am so blessed to have my friends and family beside me through this.  Even those that I don’t know well who have reached out, you touch my heart.  The visits, the thoughts, text messages, prayers, gifts, meals, chemo trips and outreach of help- they make me feel so so special. 

I am blessed to have the love of my family and in-laws.  They are always ready to help me take on anything.  They all call and visit me regularly, I feel spoiled.  My dad (who’s not a big phone talker) now calls me almost daily to check in.  I have to be honest, it’s quite the perk for this ordeal.   
I have been blessed with the best husband! Hey, if your relationship ever needs a pick-me-up you might want to try cancer!  Just kidding of course but there’s something that happens when a life-threatening illness interrupts your life and you realize that those little arguments were not worth it.  You stop taking each other for granted and make the most out of each moment you have with each other.  I feel like I’ve fallen in love again- only this time much harder.   The night of my first chemo treatment Ben (who is border-line narcoleptic) stayed up with me because I could not sleep and comforted me.  I will never forget that moment.  I cried myself to sleep that night and my tears were only a product of deep, abiding, overflowing love for him.  Thank you Cancer!  Without you, non-emotional old-me would have probably never felt that.  We now have a marriage that’s stronger than ever.  Just in time to welcome our new addition (I’d call that another blessing….and she’s healthy!  Need I say it?).

Certainly not last on the list….I’ve been blessed with life, this life on earth and eternal life from God.  I don’t have to live life in fear anymore…of those haunting statistics related to the grade of my tumor.   Constant worry of what might take place in the future is now changed to a focus of living each day like it may be my last.  If I live to be 100 years there is still not enough time to waste worrying about Cancer or whether I get everything done on my to-do list or if I’ll close a big deal or how the lady on the next treadmill keeps trying to sneak a look at me.  
And there we are!  See you later Debbie.  I feel much better…